Living with vasculitis
Living with vasculitis
Overview
Vasculitis is a group of rare conditions that cause inflammation in the blood vessels.
Nicola’s story
In this video, Nicola talks to Rosemary Hollick, a rheumatologist, about her experience of living with vasculitis. They discuss:
- what vasculitis is
- being diagnosed with vasculitis
- different parts of Nicola’s care
- the impact of the diagnosis on her life
- what it’s like living with an invisible rare condition
What is vasculitis?
Vasculitis is a group of rare conditions that cause inflammation in the blood vessels.
Blood vessels in any part of the body can be affected, including the:
- kidneys
- lungs
- skin
- eyes
- ears
People are affected in different ways and to different extents. It can be mild, severe or life threatening.
Support with vasculitis
In her video, Nicola explains some things that have helped her deal with vasculitis. These include:
- having the safety net of healthcare professionals when help is needed
- being reminded that your condition isn’t all of you – seeing yourself as a person and not only as a patient
- talking to someone about her condition, for example a psychiatrist
Find out more about vasculitis from Vasculitis UK
Don’t include personal information e.g. name, location or any personal health conditions.
Common Symptoms
Symptom information is not available for this condition yet.
⚠️ This symptom list is for educational purposes. Having these symptoms does not mean you have this condition. See a doctor for proper diagnosis.
Medicines Commonly Used
⚠️ These medicines are commonly used for confirmed diagnoses of this condition. This is NOT a recommendation or prescription. Treatment must be determined by your doctor.
No medicines have been linked to this condition yet.